Creutzfeldt Jakob Disease

[Mad Old Cow]

Just wondering if anyone knows of anyone that has passed away with this disease?
My mums partner of 30 years did. He was 72

[Stormy]

The only thing I learned about it is that any equipment used on a person with CJD that has come in contact with their blood, organs or brain matter has to be destroyed. The autoclave doesn't sterilise the prion that causes the disease. I've never met or cared for anyone who had it that I know of. :dk:

[Gin please!]

I have heard of it but thats it for me...

[Mad Old Cow]

A truely dreadful death comes from this disease it is like a horror movie of the worst kind :(

[sandydee]

I havent heard of it,but it sounds terrible.

[2catscan]

It's quite rare, you would have to be very unlucky to contract it. It can be genetic too.

[eLL85]

After you asked about this question I went and read about it on wikipedia. Aparently one type of that disease is caused by people eating Mad Cow Disease effected beef. And it said the incubation period can be 40 years so they expect us to actually get more cases of it in the future due to the amount of tainted beef that was allowed into the human food chain before they realised the problem.

Scary stuff and such a terrible disease.

[lizbeth]

No I have not heard of this disease sounds awful.
My condolences go out to your Mum..

[Mad Old Cow]

Thankyou lizbeth, he died 8 years ago now but he was one of the nicest men i have ever met, a very gentle religious man who never had children but loved me & my sibblings & adored our children, just makes me wonder why someone so lovely could die such a horrid death.
He found out he had prostate cancer & within 1 week of finding out about the cancer the CJD broke out & took him within the month, the Doctors say that it may have been laying dorment for years & the news of the cancer set it off but they really will never know what the trigger was

[lucyloo]

Sounds terrible MOC. :comfort:

[Kjoy]

Just wondering if anyone knows of anyone that has passed away with this disease?
My mums partner of 30 years did. He was 72

Two ladies I worked with back in the late 80s in London both died from (many years after I had left there). They were not diagnosed until after their passing. I was still in contact with one of them up until a while before her death and at that stage she was having test after test as they tried to narrow down what it wasnt - multiple sclerosis etc.
It was after her death that her daughter wrote to me and told me what she had been diagnosed with and that they had discovered her friend, our co worker, had passed from the same thing a few years earlier.

I dont know anyone is Australia tho and had heard that there wasnt very many. Sad to hear your mums partner was one of them.

[Heather]

A fair few people who were treated with Human Growth Hormone (now synthesised) when children are living with the knowledge that they may well have the disease.....that's a horrible thought.

[miss kiki]

so sorry to hear MOC. sounds horrible. :hug: :(