Maybe a bit personal

[djmastermum]

This is probably a really personal thing, but I am so excited. I am on a MS treatment. When I had it in my hands yesterday I said to hubby that it felt better than it would holding the winning $90 mil lotto ticket.

As soon as I started the treatment I started a diary about it, got Branden to film me take the 1st pill, seems silly to y'all no doubt, but it is a huge thing for me because I have had MS for over 20 years, and not once was I offered any medication or treatment, my neurologist is an ignorant pig who I have only ever seen 4 times since the diagnosis, yet he told me it was pointless treating me since I don't get attacks ... How would he know, he never saw me.x(

Told him about Low Dose Naltrexone that I had discovered myself as a MS treatment, only to be told that he is the expert and MS is his specialty and if there was anything that would help his patients he would know about it first. Then he went on to offer me Chemo, which is a highly dangerous drug, that in itself causes cancer, as well as wiping out the immune system. I declined that. I would probably be dead now if I went through with his psychotic plan.

Well, I decided I wasn't gonna be seeing him again, and went to a new GP, and introduced him to the LDN and he actually looked into it and reseached it and found that is indeed an effective drug against MS .... SOOOO, moving on, whilst it is still early days ... here is my LDN DIARY so far.

LDN DIARY

I took my first pill around 7:15 pm, 29/6/2009. I noticed that my body felt weird, like it was ’buzzing’ about 15 mins later, have since worked out it was my nerves ’Waking’s and being able to feel again; a difference just after 9pm, my body felt calmer; more relaxed. I noticed that in a sitting position my legs and feet didn’t keep moving every 30 seconds or so from involuntary muscle spasms. My legs felt ‘free’ no longer set in 'cement'. I am impressed to see such a quick reaction. I still feel giddy though.

[miss kiki]

glad that this pill is working for you! all the best! :)

[lucyloo]

I hope the medication continues to work for you. :)

[Naomi]

Well worth getting a second opinion if you think your specialist isn't doing his job. I hope it continues to help and improve your MS.

[djmastermum]

With the good comes the bad. It was mentioned that during the 1st week ms symptoms may appear to worsen, and yes they have been honest. I feel like I can’t function on even the basic of levels Three screaming boys are going to test me. :argh:

[Issi]

I'm glad things seem to be working for you. I can't imagine suffering a long term illness. It's good that you've finally seen someone else although you're more patient than me as I don't think I'd have lasted that long if I was unhappy with someone. I hope it works for you.

[Frannie]

:fx: Lets hope things just get better and better.................

[sandydee]

I really hope this benefits you with your battle with MS:yes: I care for clients with MS:yes: its horrible.I wish they could have a cure:yes:
Best of luck Josie:yes:

[djmastermum]

I really hope this benefits you with your battle with MS:yes: I care for clients with MS:yes: its horrible.I wish they could have a cure:yes:
Best of luck Josie:yes:


There is a cure, it is all to do with diet. A strict vrgitarien diet of 52% raw foods. My fiend has a friend who had MS worse than me and now he has fully healed. He saw a natrapath. I am using LDN while I heal the rest. LDN only treats the symptoms not the cause.

I have been feeling good today, even though I have only just started the treatment.

[Issi]

Really? I didn't realise there was a cure? How amazing. Other than the readathon, I don't think I've ever heard that much about MS. I am very glad that they have found a cure though.

[Maggie12]

Good for you. Love your diary. all the best with that - I send you my best vibes.

[djmastermum]

Oh no they will never tell you that there is a cure, there is too much money to be made with sickness. The MS Society will not even tell its members, the ones with MS about LDN. Dr's do not know about it, my Dr knew nothing until I introduced him to it. I am lucky that he is open to alternative things, most are not.

[sandydee]

:yes: I never knew that either.

[2catscan]

Good luck to you. My uncle has had MS for many years, he is now 82 and still drives - sure, he is not 100% but he functions pretty well, gets around on his own two feet and is independent. So keep your pecker up, try whatever you feel might work for you!

[Supa]

hope you get good results, maybe you should do an online blog?

[sandydee]

Thtas a great idea Tina:yes: I am sure it could help others out there too:)

[eLL85]

Good for you. I know how hard MS is I have a family member with it. I am glad you are getting treatment.

[Melinda]

I have a very dear friend with MS who i speak to on the phone at least once a day and i know her struggles with diffrent things...

i will tell her about this...

i wish you all the very best...:comfort::hug:

[Supa]

Thtas a great idea Tina:yes: I am sure it could help others out there too:) Thats what I was thinking Sandy it would help & give hope to others out there perhaps

[Melinda]

How are you feeling i was just thinking of you....

[kell74]

hi, thats fantastic that its working for you and you finally found someone that knows what they are doing

i have 2 auntys with MS and my mum and i get checked once a year for it as well
will need to tell them about this Med...not sure if they know about it

[Shade]

Oh no they will never tell you that there is a cure, there is too much money to be made with sickness


Multiple Sclerosis is a disease of the central nervous system for which there is currently no cure. Management of an illness is a strategy to combat difficulty. It does not mean that the disease is gone.

The symptoms of MS are varied and unpredictable, depending on which part of the central nervous system is affected and to what degree so just because two people have MS, does not mean that they will experience it in the same way.

I say this because my aunt was a long time sufferer of MS and it was a contributing factor in her death. I find flippant statements such as the one made above to be ill informed, irresponsible and distressing.

DJ, I am so sorry you had a doctor who did not properly inform you and I truly hope you continue to see improvements in your condition.

All the best to you,
Shade

[djmastermum]

LDN isn't a cure, it is a treatment that stops the progression. It has been around since 1983, and if dr's here were informed I would have got to the stage in the illness that I am now. At least it can be stopped from here on.

[Sunny]

Dont forget that the Alternative Health Industry is worth big bucks too hun. I really hope the LDN works for you and wouldnt it be great if it does and you can become an advocate for it and help spread the word. See how you go with it first though because not everything always lives up to its promise. I tried the raw food diet i wouldnt recommend it to anyone else and i've come to view it as a form of Orthorexia Nervosa. I do think diet plays a big part of your health tho and fruit and veg all the way but i dont think being extreme about it helps, plus youve practically got to graze like an animal would all day to have the energy to do anything and carry a whole bunch of fruit and stuff around on your back to do it haha ive seen people mention different health conditions that the diet helps like diabetes and such but really if you be sensible with your food and diet you can control that anyhow you dont need to go full raw to get those results, and if you live in SA you'd only really be able to eat that way in summer or would freeze your bum off! Anyway each to there own and if you wanna try it go for it but i wouldnt believe all the promises made by it