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Thread: Maybe a bit personal
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30-06-2009 09:42 AM #1djmastermumGuest
Maybe a bit personal
This is probably a really personal thing, but I am so excited. I am on a MS treatment. When I had it in my hands yesterday I said to hubby that it felt better than it would holding the winning $90 mil lotto ticket.
As soon as I started the treatment I started a diary about it, got Branden to film me take the 1st pill, seems silly to y'all no doubt, but it is a huge thing for me because I have had MS for over 20 years, and not once was I offered any medication or treatment, my neurologist is an ignorant pig who I have only ever seen 4 times since the diagnosis, yet he told me it was pointless treating me since I don't get attacks ... How would he know, he never saw me.
Told him about Low Dose Naltrexone that I had discovered myself as a MS treatment, only to be told that he is the expert and MS is his specialty and if there was anything that would help his patients he would know about it first. Then he went on to offer me Chemo, which is a highly dangerous drug, that in itself causes cancer, as well as wiping out the immune system. I declined that. I would probably be dead now if I went through with his psychotic plan.
Well, I decided I wasn't gonna be seeing him again, and went to a new GP, and introduced him to the LDN and he actually looked into it and reseached it and found that is indeed an effective drug against MS .... SOOOO, moving on, whilst it is still early days ... here is my LDN DIARY so far.
LDN DIARY
I took my first pill around 7:15 pm, 29/6/2009. I noticed that my body felt weird, like it was ’buzzing’ about 15 mins later, have since worked out it was my nerves ’Waking’s and being able to feel again; a difference just after 9pm, my body felt calmer; more relaxed. I noticed that in a sitting position my legs and feet didn’t keep moving every 30 seconds or so from involuntary muscle spasms. My legs felt ‘free’ no longer set in 'cement'. I am impressed to see such a quick reaction. I still feel giddy though.
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30-06-2009 10:35 AM #2
Re: Maybe a bit personal
glad that this pill is working for you! all the best!
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30-06-2009 12:38 PM #3
Re: Maybe a bit personal
I hope the medication continues to work for you.
Love the life you live. Live the life you love!! Bob Marley
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30-06-2009 02:46 PM #4
Re: Maybe a bit personal
Well worth getting a second opinion if you think your specialist isn't doing his job. I hope it continues to help and improve your MS.
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30-06-2009 02:49 PM #5djmastermumGuest
Re: Maybe a bit personal
With the good comes the bad. It was mentioned that during the 1st week ms symptoms may appear to worsen, and yes they have been honest. I feel like I can’t function on even the basic of levels Three screaming boys are going to test me.
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30-06-2009 04:20 PM #6
Re: Maybe a bit personal
I'm glad things seem to be working for you. I can't imagine suffering a long term illness. It's good that you've finally seen someone else although you're more patient than me as I don't think I'd have lasted that long if I was unhappy with someone. I hope it works for you.
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30-06-2009 05:13 PM #7
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30-06-2009 06:14 PM #8Hanging around here
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Re: Maybe a bit personal
I really hope this benefits you with your battle with MS
I care for clients with MS
its horrible.I wish they could have a cure
Best of luck Josie
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30-06-2009 08:38 PM #9djmastermumGuest
Re: Maybe a bit personal
There is a cure, it is all to do with diet. A strict vrgitarien diet of 52% raw foods. My fiend has a friend who had MS worse than me and now he has fully healed. He saw a natrapath. I am using LDN while I heal the rest. LDN only treats the symptoms not the cause.
I have been feeling good today, even though I have only just started the treatment.
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30-06-2009 08:41 PM #10
Re: Maybe a bit personal
Really? I didn't realise there was a cure? How amazing. Other than the readathon, I don't think I've ever heard that much about MS. I am very glad that they have found a cure though.



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Lets hope things just get better and better.................



I reckon Lucy would have liked a little play mate but she is stuck with me :hehe:
How cute is this!